Tag: The Limb Center

Picking Apart Phantom Pain

Picking Apart Phantom Pain

The Real Mental Side of Phantom Pain

 

Ok, let’s talk about Pain. Not just any pain, but the “real” phantom pain.

It comes on without warning.

It can destroy our mood, our productivity, and our confidence.

When it does happen, and for amputees we will all have the pleasure of experiencing it at some point on our journey, it’s enough to cause us to doubt we will ever be able to function again because we can’t see an end to it in sight. It’s the most disabling thing about being an amputee because we cannot control it.

Just two weekends ago I experienced one of my many episodes of phantom pain. I was fine when I woke on Sunday morning, enjoyed a few hours of “normalcy” then out of the blue, like lightning strikes, I was seized with a multitude of sharp, knife driving pains, in the bottom of my non-existent foot!

At first it was just startling and I was wracking my brain as to why it might be acting up. You see, for me, I know what things might cause me to have a flair up of pains from the activities of the day or night before, but not this day. Nothing I could have done would prepare me for this nor could I comprehend what had made these phantom pains come on.

As the day wore on these flashes of pain came more sudden and more often. They are so real feeling that my “foot” was getting sore from all the stabbing.

The prickles on the cactus and thorns on the tree remind me of the sharpness of my phantom pains

 

If that isn’t a mental attack on the brain I don’t know what is!

If you are an amputee you need to make sure you have a toolbox of info and memories to use as you navigate throu9gh each episode of phantom pains.

Join me today as I discuss what a toolbox is and how you create one.

Remember to be kind to yourself when these pains hit. They will try to crush you and break your spirit but you can and will get stronger with each experience. Just know that it’s ok to shut down for a while as your head tries to understand what’s happening to your body.

You are strong enough and you will make it through.

These episodes don’t last forever, and you will soar once again.

 

Be the warrior you were meant to be and rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

 

Compete

Compete

Find Your Purpose, Set Goals, and Get to Work

This is me BEFORE my knee injury that led to amputation

Competition gives you focus and direction in life. It helps to define your day, provides a sense of purpose, and helps build character and resilience.

All my life I have been competitive. I had big brothers around always “toughening me up”, and sports were an every moment event, whether competing on our home basketball court or joining teams that played every weekend.

I think these moments served me well, and prepared me for a life after limb loss.

For some of you, the journey has been a long and hard one. It hasn’t been easy and you may feel like giving up.

Maybe you even think that “this is as good as it gets”, but I’m here to tell you, DON’T GIVE UP!!!

You can do this! Last week I talked about mindset, well, this is the time to put your mindset to the test and work on positive self-talk.

 

 

On the hard days, when things hurt or you feel out of sorts, or maybe you are not at a point of wearing your prosthetic yet, you may get discouraged…heck! Maybe you ARE discouraged. Now is the time to buckle in and dig deep. This is the time to set those goals and reach for them.

When I find myself in the struggle where pain is winning and I feel like doing nothing and getting depressed about this moment in life that things aren’t going as planned, that’s when I find something to take my mind off of it. I usually find something that brings out the competitor in me. This gives me a goal, a purpose, and consumes my time which takes the attention off of what I’m struggling with.

 

How about you? What do you do to fill your time? Give yourself purpose? Or distract your thoughts changing them into a positive flow?

 

 

Now it’s your turn.

Let’s turn your situation into something positive and meaningful, even if you feel like everything is going wrong and you aren’t where you want to be.

 

Set goals.

Be realistic but challenging.

If you aren’t able to wear your prosthetic just yet then don’t get down on yourself, remember life is a journey, the good and bad of it, so make some lemonade while you wait.

Once you’ve reached those goals, then go ahead and set more. Keep creating challenges for yourself. Setting yourself up for success in the waiting will eventually make you see that you are not waiting for life to happen to you anymore, but that you are living it.

 

Enjoy the process.

You deserve it and you are strong enough.

You are a warrior!

Hope your goal setting is epic just like you!

And until next time, and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

Inventors & Innovators: Surfing Brings Healing

Inventors & Innovators: Surfing Brings Healing

Adaptive Surfing with Swell Surf Foot

 

 

The Ocean is healing.

The Mana (power) of the ocean has a way of grounding you and setting you free so you can soar. It’s an unbelievable feeling!

Just before my 1 year anniversary of my amputation I traveled to Kauai and tried my hand at surfing. I hadn’t been able to get in the ocean, or really any water, for over 5 years due to surgeries and my inability to maneuver because of my injury. I was excited, and nervous.

Once I learned the basics I found a rhythm to surfing, a rhythm to the ocean. I felt the energy it had, and I felt that energy surge through me.

I no longer felt nervous, I felt carefree and alive, and I felt that ANYTHING was possible!

Today I talk with Zach Samalonis, the co-creator/inventor of Swell Surf Foot. He and Yuhan Zhang started this endeavor for a college course. They talked with surfers in the amputee community to get the data they needed to create a prototype, then designed, created and then got a few of their original designs into the hands of amputees ready and willing to try it and give feedback. I was fortunate enough to be one of them.

 

This is my original surf leg and foot alongside the Swell Surf Foot prototype.

 

Today we discuss how this adaptive equipment came to life from thoughts and research to designing and creating.

What amazes me is that neither Zach or Yuhan are amputees, but they were charged with finding a problem that needed to be solved and a community that needed their help for their capstone project their senior year at Thomas Jefferson University. The Swell Surf Foot can help bring surfing to more amputees and also brings those people to the ocean for healing. This low cost, water-proof prosthetic was developed with an increased ankle mobility to allow for correct surfing mechanics. In a world where most adaptive surfers have repurposed and fashioned make-shift surf feet because there was nothing on the market, this was filling a need, and want, in our amputee community.

What a beautiful gift their innovation is for adaptive surfers around the world.

Their dedication solving a problem and filling a need is genuine.

In a world where big companies rule the market, it is awesome to see individuals creating and making their mark.

Listen in to hear Zach talk about their inspiration, production, and dreams for the future of their product.

Find them online, give them a follow, and reach out to them if you’d like to try their product in it’s next gen status when it comes out.

 

Thank you Zach for your time today and sharing your story.

I look forward to putting on your surf foot again soon and feeling the freedom and energy of the ocean. Thanks to you and Yuhan, I have found a foot that brings comfortability, grip, and steadiness to my surfing sessions.

 

The ocean is a place for healing and finding freedom.

The Swell Surf Foot is a step in the right direction to getting more amputees out, active, and giving them the peace they need to move forward.

 

Have a blessed week and make sure you subscribe and share so that you and the people you care about don’t miss the amazing people coming up next on this podcast; each making a difference in the lives of amputees everywhere with their creativity, ingenuity, and dedication!

Check them out on Instagram @surfwithswell

or at Zachsamdesigns.com

 

As always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Transparency

Transparency

The Truth About Being An Amputee

 

Not everyday is a picnic.

This is true for everyone around the world, but when you talk to amputees who lost their limb because of an accident, disease, war, or electively, the operation is just the beginning, not the finale.

Once we heal and begin to transition into a prosthetic- wearing person we are just then beginning to experience what amputee life is like.

I started this podcast, not because I wanted to hear myself speak (I hate hearing my own voice!), but because I wanted to be the voice of reality, and transparency for this community. I wanted to be real, no matter what that was going to look like.

The past 2 weeks have been very hard for me, emotionally, mentally, and physically. Even though I have enjoyed traveling with my family, skiing and walking the Vegas strip, my residual limb has been struggling to fit properly into my skin fit socket. When the fit isn’t right it swells and becomes hard and very sore. Then through the night it settles down a little but then the next day I try to put my prosthetic on only to have an ill fit again, making it worse throughout the day.

Mind you, I have had this socket for over a year and I haven’t experienced this, then after being at higher elevations, flying, skiing without it on, I find myself not fitting well.

There’s not much to do about it but hope that I “normalize” again, soon, before it gets any worse.

This is the life of an amputee.

Some of us look like it’s all roses, but were have our days and even weeks (and some struggle for months) but we can hide it well.

Transparency is important to me because so many amputees that I’ve talked to are so frustrated because the ones they see on social media are living life and doing so well (you know, only showing the best moments) and they are not. They, and maybe YOU are one of them, that can’t figure out how you will ever wear your prosthesis or walk in it. If you’ll ever be comfortable again or without pain.

It is not an easy journey, but you can succeed in this life.

You have to understand the reality of your new circumstance and what it entails, really, before you can just be running along in your prosthetic leg. it doesn’t happen over night. it takes practice, patience, and a lot of faith.

You will feel knocked down at times, but you must get up again and keep trying, keep pushing forward.

Don’t give up….

This too shall pass and you will find your way through the challenges and struggles.

 

 

I have a simple task and request for this week.

Next month, April, is Limb Loss/Limb Difference Awareness Month and I have a full month of interviews with AMAZING individuals who have spent time creating, inventing, and innovating designs and products to help our amputee community.

You really don’t want to miss out on an episode in April so my CTA is simple:

Subscribe to my podcast and my YouTube channel (BAWarrior360) so you don’t miss any of these special people and the work they are doing. Plus, please share my podcast with someone you care about who you think could benefit from some positivity and encouragement as they navigate amputation or even medical circumstances that they struggle with.

 

 

That’s it! Subscribe, Like, Share!

I hope to continue to grow my audience so I can help and motivate more and more people in the world.

Thank you, warriors, from the bottom of my heart!

Have a beautiful and blessed week until next time!

 

And as always,

‘Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Me and my girl ♥
Connect

Connect

How Connecting Helps Everyone

 

It can be so easy to get lost in our own world. We can be so focused on our problems and issues that we can feel isolated and alone in a crowded room.

The problem is, even when we aren’t really alone, we get lost in the darkness and can’t find our way out.

We forget that as humans we need connections to survive in the world. We need to be heard, seen, and touched throughout the day, even if we are introverted.

It is part of our DNA and makes us feel whole, loved, appreciated, and a part of something bigger.

 

 

We often get into a victim mentality or sink so low that we can’t find our way out of the problems and issues that we are facing that we can bring those around us down as well, and often see people leave us and don’t know why.

So what can be done to remedy this mindset?

CONNECT!!!

 

I find that when I take the microscope off of me; my life, my setbacks, and my issues and turn them into reaching out and helping others, I forget my problems and find peace, joy and happiness.

I find that making connections with others through texting, calling, video chatting or hanging out places my focus and attention on them which, in turn, gets reciprocated back to me and it becomes a win-win situation. We weren’t meant to go through life alone.

 

 

We all need to feel loved and heard, but sometimes we need to be the one who reaches out first.

When we value someone else’s life, we find our value.

As humans we are meant to live in community, not alone and isolated.

So if you are struggling now and feel alone, make a connection with someone. When you do, you will be able to step out of your darkness, become the light for someone else, and find you’re not alone after all.

Mind over matter, because mindset DOES matter.

 

This week I want you to connect with someone.

Find someone you know is having a rough time, like you. Or someone you haven’t talked with in a while.

Check in on them, and let them know you were thinking of them.

Maybe a neighbor could use a visit.

Or a relative needs to hear your voice over the phone.

Maybe a friend, who appears to have it all together, is struggling but won’t reach out (because they, too, feel alone).

Who ever you choose to connect with, be as close as you can, meaning if you can physically visit them and give them a hug, DO IT!

But if not be engaged in a conversation with them. Be an active listener, drop everything you are doing and be present. Give them all of you for that time you have together.

Everyone wants to feel valued, heard, and loved. That starts with YOU!

When you connect with someone, you will notice a shift in your own mindset and heart. You’ll get out of your own way and begin to see your life through a positive lense.

Life isn’t easy, that’s for sure, but remember, you are not the only one who is struggling right now.

Rise up and be that connection for someone and feel it reverberate back to you.

 

Get out and connect and have a blessed week!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

 

 

Insurance Games

Insurance Games

Playing To Win; Playing For Your Future

 

Dealing with insurance can be tricky and often frustrating. I speak from experience.

It’s unfortunate that insurance companies make it so hard to understand the ins and outs of their policies as well as getting approvals especially since those who are trying to get covered are often going through really tough emotional times.

As I got myself prepared for my amputation I was doing everything to prepare myself, mentally, emotionally, physically, and financially seeing as this would be a forever life changing surgery.

My experience was not smooth, nor was it kind, but I figured out how to handle my situation, found my voice, and fought for what was right and what I needed.

Join me this week as I take you on my journey with the games that insurance companies play, and how you can play and beat them at their own game.

 

This is what I fought to get……

 

So I can do this….

 

…And this

 

….And this

 

…And this.

 

 

 

 

 

 

What are you fighting for? And if you’re not fighting for what you want, then who will???

 

Randy and David at The Limb Center and also Limbs For Humanity

 

 

This week, if you are in the middle of a big decision that takes medical insurance, make sure you do your homework and get confirmation about what is covered.

If you have been told “No” by your insurance company then it’s time to fight for what you want and need.

We must fight for ourselves, because only we know exactly what we need and want to make our lives worth living.

Help yourself by fighting for your future. Don’t give up, and don’t take “No” for an answer!

You are a warrior and you are WORTH IT!!

 

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

The First 3 Years

The First 3 Years

Finding Hope after Amputation

 

No one really tells you what to expect after amputation, and quite frankly, even if they did, each journey is different.

The reality is that the first couple of years are filled with bumps, bruises, ups and downs. You will have highs and some of your lowest lows. There will be enormous changes, in your life, and in your body. And even when you finally get through the healing process, post-amputation, the challenges are just beginning. But with all that said, you can and will survive.

You spend A LOT of time in your prosthetist’s office the first 2 years

 

My very 1st prosthetic, one of many. Had no idea what was to come. All I knew was that I would be walking again!

 

Yet another socket!

 

Randy at The Limb Center in Phoenix, making my mold, for ( you guessed it) ANOTHER socket!

 

You will learn how your body adjusts, how it heals, what kind of strength (both physically and emotionally) you have, and you will build character…. oh boy, will you build character.

 

These are all the sockets (minus 3) that I have gone through, because of changes to my limb, in just 3 years!!!

 

The process is long and can be stressful if you don’t have patience. You will find yourself doing well one moment, only to feel like you’ve taken a step back in the blink of the eye. But don’t you give up! And don’t you worry. This is all part of the learning process and the changes you are going through, physically. Becoming an amputee and traversing the first 1-3 years is all about adaptability and change. If you can go into it knowing it is a process that could take that long, and that you will have positive moments of moving forward, riddled with backward steps, then you will be ready and able to handle what gets thrown at you.

You are a warrior, built for adversity.

Be strong.

Stay positive and active.

This is the to fight for what you want out of life.

We are in this journey together!

 

 

This week I want you to decide what it is that you really want out of your new life.

You will want to start building your own toolbox for those moments that become hard and emotionally draining.

I have so many hobbies, and things I do to pass the time, and to distract myself on the harder days, the days where phantom pains want to destroy me and my resolve.

What do you do when you get upset? Tired and frustrated? Or when you are hurting?

Most of us have a coping mechanism to help through those moments in life. This time is no different.

Be prepared to redirect your thoughts so you can get through and come out stronger on the other side.

Prepare yourself for battle; the internal battles that seek to bring chaos into y9ur life, making you doubt yourself and trying to destroy every dream you have. You are a WARRIOR! Believe it! You will succeed and be stronger for it.

Be prepared.

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Spreading Joy This Season

Spreading Joy This Season

Cheers to the End of Another Year!

 

As 2023 comes to a close and the holidays are now upon I want to wish you all a blessed and happy new year!

As I celebrate my 5th year anniversary of my amputation today I am realizing how blessed I have been with how much I have experienced, accomplished, and the people I have met through this journey.

I also know that the vibes you put out into the world come back to you 10 fold.

Our attitude is contagious. How we approach the world can either add joy to it or be a thorn. Which are you bringing to the world?

Today as you are experiencing the emotions of this season remember that many people are struggling. Some struggle with an invisible problem (missing a loved one, a rocky relationship, struggles with money or job) and other’s with something very real and visible (amputation, being alone, medical conditions).

Be kind.

Remember that we all struggle.

Spreading joy takes very little on our part and a smile goes a long way.

 

Finish this year strong and positive and reap the rewards of being kind and positive with the people you meet throughout your week.

I know this seems like a pretty basic and obvious statement, but when we get caught up in our own schedule and agenda we often miss helping someone in need, or miss an opportunity to brighten someone else’s day.

 

We all fight battles, we all need kindness shown to us.

As you struggle through your own situation (for me it can be phantom pains like I’m dealing with as I type this) there are others going through something even more difficult and debilitating, making it hard for them to function or find joy during this time of year, making them feel alone and isolated.

We are in charge of our own attitude and only we can choose to see our glass half full.

So where are you with your situation,  half empty or half full?

The next couple of weeks, as I take time off to be present and with my family, I challenge you to watch the world around you. Look for ways you can make it better. Smile more, see the silver lining in your situation, find ways to bring happiness and positive vibes into the world… then watch to see how those vibes come back to you and change your life.

I hope and pray you are able to find happiness and joy during this time of year and that good health befalls you this new year.

Change your perspective, change your life.

Happy Holidays and Happy New Year!!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

The Most Wonderful Time of Year

The Most Wonderful Time of Year

Winter Wonders and Woes for Amputees

 

Wintertime brings colder weather, holidays and family time, ice and snow, along with new outdoor activities. It also brings with it challenges for getting around if you are an amputee (or anyone who struggles with balance).

Crutching on snow and ice should be an Olympic Sport

 

I am fortunate enough to live in Arizona but as a family, we love to get out and ski in the mountains of Colorado and Utah.

My very first goal as I was getting ready for my amputation was to ski again with my family. I had just 3 months from amputation to test myself.

Even though there are different ways to accomplish “skiing” I wanted to be standing and looking like I always did as a skier (minus one leg that is). My stubbornness definitely helped me. That plus my perfectionist attitude and drive.

 

 

My first day I was so nervous and didn’t know what to expect. I tell you this because even though I had been skiing since I was 17 years old there was so much relearning to be done and a lot of newness to skiing with only one ski. For instance, turning one way versus another was so much harder not having the downslope ski to aid in control.

As time went by, I began to understand what was needed to succeed. Every chance we got I went on the slopes. And every time I was on the slopes I got butterflies and had to suppress fears of getting hit from behind, falling and trying to get back up (not as easy with one ski and on a slope of snow), or heading downhill and catching icy patches.

There are other ways to ski, like on a mono ski (sitting in a bucket sled, leg(s) strapped down), or using a ski bike.

This past trip we decided to take a day off from skiing, but I wanted to be outdoors and breathing in the cold mountain air and enjoying the snow all around us, so we went for a hike into the mountains.

It was beautiful!

Backwoods hiking

 

Beautiful views, challenging terrain for an amputee

 

Winter life for an amputee is quite challenging. Just as changing our shoes, or going over different types of flooring or terrain, challenges us for a few minutes before we feel comfortable moving about with the change, winter challenges us and our feeling of confidence and trust in each of our steps. We must be more cautious, and meticulous with each step. I am always looking down at where my feet are landing and what type of surface I will be hitting with the net few steps. For me to enjoy the beautiful mountains w were hiking in I had to stop and set myself then look all around. Once I got my fill I would begin to march on once again.

All in all, I am excited for my next winter trip and plan to try snow shoeing and see how it feels to have larger foot on my prosthetic.

Even though there are a lot of new things to adjust to as winter weather approaches, know that you are capable, you just need to learn your perimeters. It takes time, but with focus and determination you can conquer winter without any falls or injury. Always know to protect your good/sound leg and take your time. Don’t allow anyone to push you faster than you are ready to go.

Stay positive and create positive verbal cues for your brain to latch onto and you’ll find yourself maneuvering snowy conditions like a pro!

 

 

FIERCE AND ON FIRE Challenge!

Don’t forget that we are still charging forward on 100 miles before Jan 1!

Are you in?

Check the past couple of podcasts for the link to join and to register for the challenge at Run Motivators if you want to order a medal for your trophy case!!

 

Let’s keep moving and end 2023 active and healthy!

 

May your hot;liday season be filled with family, fun, joy, and blessings of all kinds.

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

The Secret To My Success

The Secret To My Success

Creating Positive Momentum Through Challenges

 

This week let’s challenge ourselves!

Let’s face the mountain head on and not veer out of fear.

It’s time to unleash the warrior within you, are you ready??

Well it doesn’t matter, now is the time! If you wait until you are “ready” then the time will never come.

 

SO how did I start my amputee journey, you ask? I was ready! I was nervous, of course, but when I came to grips with it I was ready to soar. I began to dream and wonder what I could accomplish, what hurdles I would overcome, what new things I would learn. To say that I was excited about the possibilities, would be an understatement.

 

I began by wearing my leg out of the prosthetist office and using it all day every day for a week…WITHOUT PT! Needless to say, I was so bruised on my femur bone!

I mean, I was walking, and so proud of myself, but I needed help tweaking my form and gait.

After I took some PT I began a new journey with new dreams. I was going to reinvent myself, whatever it took!

 

I had about 12 goals set for myself, even before my amputation, about what I would accomplish as an amputee.

Obviously I wanted to walk as naturally as possible, and as soon as possible, but there is no shortcut or magic potion to make that happen. It takes grit, determination and consistency.  But how do you maintain consistency, especially with something that is scary, uncertain, and hard to do?

What I did was register for virtual races! Not only did I have set miles but I also had the metaphorical carrot dangling in front of me…the cool looking medals!!

My very 1st race as an amputee! This started it all and how I got use to my prosthetic leg.

For me, that’s all it took! I registered for my first 150 mile race in May, a month after getting my prosthetic leg. I made a promise to myself that all of my steps in my leg would count toward my miles, then I introduced myself to the large Facebook group and told them of my goals. Not only did writing it down for all to see make me accountable for my goal, it also gave me a HUGE cheering squad with this new group of friends!

And this is where it all began! I attribute my success of learning to walk again to my virtual races.

 

These were the ones I did the first 1 1/2 after becoming an amputee! They all have special meaning,
depending on what I was trying to accomplish, how I felt or what I was going through.

 

 

It’s your turn now, and I’m going to help you and be there by your side as we do this together!

Let’s crush a goal before this year ends.

No better time than the present to start, and the best time of year to make time for yourself.

The link below is to register for a 100 mile virtual race.

I have already registered and I want you on my team!

I will create a private Facebook group too, just for those who join this race with me.

Can’t run? No problem-WALK!

Can’t walk? Bike, recumbent, stationary or  traditional.

Can’t do those things? SWIM, use a hand bike, exercise with stretch bands, dumbbells or body weight!

 

The sky’s the limit on how you go about logging your miles.

3 miles of biking= 1 mile of running/walking

exercising moderately 30 min=1 mile of running/walking

etc, etc, etc

 

You see where I’m coming from? We can all do something to help us feel better and get on track. So no matter where you are, don’t think for one second that you can’t do something in some way, shape, or form!

It is time to unleash your inner warrior! Fight for the life you want! Start today and let me walk alongside you and your journey! After all, we all need someone who gets us where we are at.

 

I’m here for you so won’t you join me on this virtual race?

Join me and let’s “sleigh” this holiday season! No excuses, no surrender!!!

 

Click HERE to register for the Fierce and On Fire Challenge

 

Oh, and did I mention that not only are you helping yourself by joining this challenge, you will also be supporting the Erin Regan Animal Sanctuary non profit 40 acre farm. A portion of your registration in this challenge goes to support this cause. This non profit is dedicated to saving the lives of farm and companion animals from abuse, euthanasia, and homelessness.

It’s a win-win in my book! Join me today! Click the link above!!

As always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,