Tag: medical team

Are You Listening?

Are You Listening?

Learning To Listen To Your Gut

When you are going through something have you noticed how many people have advice?

The questions of: Have you tried this? Did you see Dr. So and So? This is the only prosthetic that works…. etc, etc.

I have had the opportunity to see many doctors throughout my injury, been to an amazing plastic surgeon, and have great prosthetists. I tell new amputees all about them but I try to stay conscious of pushy. My personal experience is MY personal experience, and I am always hopeful that it can be somebody else’s experience too, but it may not be. This just recently happened and it was heartbreaking to see. Without going into detail, because that’s what this podcast talks about, I had a couple of friends, amputees, use one of my doctors to help with revisions and their experiences were not like my positive experience.

I also watch social media posts and peruse the comments and am taken aback by the many people who believe their way is the only way, their doctor is the best doctor, their prosthetic brand is the best out there. Do you see where I’m going with this?

“Always”, “Never”, “The Best”, and “The Worst”, are red flags in my book, and should be avoided at all costs.

So why do we fall victim to adhering to these types of comments and following this type of advice? When we are in pain, scared, anxious, and in doubt we want ANYTHING that will get us out of that situation, and the faster the better. When we ask a large group of people (social media groups) how they handle this situation, or ask for help when we are experiencing phantom pain so extreme we are beside ourselves, we will take any advice if the person comes across unwavering and confident in their advice.

The problem? We are all DIFFERENT!

The love I have for my prosthetic. I am empowered to live my best life, with my new lease on life.

 

We have different reasons for our injury, different backgrounds, different personalities, different pain threshold levels, and completely different reasons for what we are feeling.

Just last week I experienced phantom pain, like my foot had been set on fire. It was non-stop, day and night. I haven’t had that in a long time. This time it was caused by my situation, not my fit. I was very upset and stressed about something (listen to last week’s podcast), and this was how my body dealt with it. However, if I had told any Facebook groups that I was dealing with this major burning, without giving the situational background, like so many people do, I would’ve been told that pain meds work, or gummies were the way to go, or try sleeping it off, etc. But what I needed to do was get outdoors for fresh air and allow myself to grieve. The fresh air and exercise helped me cope with my issue, which allowed my phantom pains to subside.

Fresh air and exercise! Just what I needed.

 

I knew what I needed. I trusted my gut on why I was experiencing what was happening to me.

We sometimes forget, in the midst of hard times, that if we just listen to our bodies, that we know what’s best and what is right for us.

When we schedule an appointment with a doctor but feel unsettled when in the office, we need to listen.

When we struggle with pain, we must quiet ourselves enough to listen to what our body is telling us.

Yes, it’s good to get some opinions, but take all advice with a grain of salt. We know ourselves better than a doctor with a PhD. We understand what we’ve been going through more than a random keyboard warrior who loves to put their two cents into everyone’s problems.

Aren’t we worth that?

Don’t we deserve the best care possible?

 

It’s time to advocate for yourself.

When you have an appointment, make sure you take questions you want answered so you don’t forget them if your train of thought gets derailed (mine did as soon as one doctor brought up amputation for the first time-I was stunned and my mind went blank. Luckily my husband was with me).

Bring someone you trust with you to the appointment (see comment above).

Listen to what your body is telling you. You know YOU best! DOn’t doubt yourself.

Remember, advice is great for optionality, but there is no “One size fits all” answer to your situation.

You are a warrior! Don’t you forget that! Fight for yourself! Fight for the life you’ve envisioned for yourself. You deserve the BEST!!!

I’m praying for you. Rise up and be heard, Warrior!

 

Until next week, as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

 

Dare to Dream

Dare to Dream

You are Special and Deserve It!

 

What do you do when you’re struggling? Maybe you are like me and lost a limb. Maybe you have a plethora of other medical issues and have been wheelchair bound. Or maybe you just can’t get out of your own way and headspace.
Is this you?
I know you want more from life.
You may have even questioned, “Is this all there is for me?”
Don’t give up!
Dream!
Chase answers!
Seek help!
I struggled for 5 years and went through 10 surgeries, only to be left with a leg that only had 20° range of motion and wouldn’t straighten. I could barely move around my home, let alone ski with my family, hike, take the dogs for a walk, or ride a bike.  All dreams that I knew were fading away! Talk about depressing and defeating.
A blood clot was my wake up call and the metaphorical nail. I talked, researched, visited doctors, asked opinions, even spoke with other amputees to make up my mind.
Dare to dream!
Don’t give up!
Join me today to hear how this journey is going and at the end of my podcast listen for my Call to Action for YOU! Let’s do this together!!
Make a list of the dreams you have. List everything that you would love to do, see, experience, try.
Dream big! Don’t be afraid. Spend some quiet time thinking and dreaming. Write them all down.
Now place them in an order that builds upon each other. Maybe some are more accomplishable now and work to build upon the next and so on.
Finally, ask yourself what you need to do to accomplish goal 1, goal 2, etc. Pursue those goals by working through what’s stopping you.  I understand that some may seem really far off based on medical situations. If your goal is to run a 10K and you’re in a new socket then plan to start small. Maybe it’s getting it on and wearing it around your house for a few hours, then for the day around your house. Work toward walking all day in it, out and about. Then work toward walking to the mailbox every day. The next thing you know you’ll be out walking a mile, then 2.
Take your big dreams and break them into small goals to achieve them. Only you know what it will take to get yourself there. For me it was scheduling my amputation, then dealing with that loss, then healing and getting a prosthetic. Finally I registered to run a 10K a year out and worked on strengthening and learning to walk again. Baby steps. I may not have run the whole race but I DID finish!! Then I moved on to my next goal. I had them all mapped out in my head and on my vision board in my bedroom (see the podcast on making a vision board back in season 1) I highly suggest a vision board to help you visualize your dreams and goals!!
Spend the next 7 days dreaming and writing them down.
If you need to talk through your plan please feel free to reach out to me on IG; @BAWarrior360 or Facebook: BAWarrior360
I’d be happy to help in any way I can.
Until next week and as always:
Be Healthy,
Be Happy,
Be YOU!!
You are a Warrior!
Much love,
Angie
Is Amputation Right For You?

Is Amputation Right For You?

Advocating For Yourself When You Reach That Moment

-My First steps as an amputee
-This was pure joy: a new life had been opened up to me
-The possibilities were endless

-My amazing nurses that saw me through
several days of recovery
-This was just before being discharged
-Excitement mixed with nerves

-Dr Judd Cummings, my amazing orthopedic surgeon

 

That moment had come, in my mind. I had done everything to make my knee work the way it was suppose to. I spent years in PT. I tried medication, pain management, dry needling, cryotherapy, holistic/Eastern medicine, blocks, non-invasive surgeries, and allergy testing. NOTHING helped. When I came home from Europe only to find out I had a blood clot and could’ve died in flight was it then that  I realized  that was it, the end of my pursuits to regaining mobility with the knee I was born with.

Enter Dr. Judd Cummings.

He listened to my concerns, had a real grasp of my years of trying to make things better and let me know that I was in the right place, checked off all the boxes, and that amputation was definitely a route he could help me take.

Was this an easy thing to talk about? No way! For a while I couldn’t even say the “A” word. If I did, it became real and I wasn’t emotionally there yet. I got several other opinions before heading back to Dr. Cummings office. One opinion even told me that I’d never walk again if I amputated!! Can you believe that!?!?

The reality is, you need to be in the right state of mind to accept it and go forward with this surgery. How did I know it was right for me? I knew I had exhausted all my options. I had started talking to people in that world who had success with their amputation, and I knew that I was NOT living my life. I was defeated. I was tired of working so hard for something that wasn’t working. I missed doing things with my family, my boys, who were growing up so quickly before my eyes while I watched from the sidelines.

I once had a doctor tell me that I would be a good candidate for amputation however I wasn’t there, yet. I had no idea what he meant by that….until my blood clot. It was like a final slap in the face. The final straw that broke the proverbial camel’s back. At that moment, in the ER, when the doctor told me I had a blood clot, I knew right then and there that I was physically ready for amputation.

I spent over a month getting second opinions, even though I knew I wanted Dr. Cummings to do the surgery, but I was doing my due diligence. Making sure I heard everything loud and clear from several medical professionals, asking a lot of questions, and sometimes hearing things I didn’t want to hear. Each one of those appointments lead me to the final decision, with conviction.

After I set the date for December 18, 2018 I had 3 months to mull it over, ask more questions, worry, get confused, doubt my decision and have nightmares. It was not an easy road leading up to that fateful date. But in those months I gained mental strength that was needed to rise above and succeed in my endeavor. By the time I woke, the morning of my surgery, I was in the best spirits, the weight of my decision was in God’s hands and I was ready! My Faith drove me forward, gave me confidence and conviction.

-I did it for them❤

When I woke after surgery, the moment I actually feared the most, I never felt better. Even my family was shocked by my recovery (I usually am very groggy and sick to my stomach when I come to), and my chirper behavior surprised them.

As I speak with Dr. Cummings in my interview you’ll hear some things that can help you succeed, if this is the path laid out for you. We discuss advocating for yourself in the doctor appoints, gaining perspective through talking to others who have been there, and knowing when to seek another opinion. Dr. Cummings also tells us what things he, as a professional, looks for when deciding if amputation is the best avenue for his patients.

This is not an easy road but it is possible to live your life once again. Yes, I look different. Yes, I have more hurdles to jump over when doing everyday chores. Yes, there are good days and bad days, but everyone has those. It’s ultimately your mindset and the attitude you take about your circumstance that can determine the success you have or don’t have.

Take a listen. Hear what we are saying and know that you, too, can live a full, healthy, and active life as an amputee.

Find joy in where you are, and hope that new adventures can still be had after amputation!

This week, if you believe you may be a candidate for amputation, or you’re leaning towards it, OR your doctor has told you that this is the way you should go then I want you to do a few things to help you in the decision making process.

  1. Check with your insurance on their coverage. This is a lifelong journey, not done once surgery is done. You’ll need to really advocate for yourself with your insurance company for the surgery AND the prosthetic care afterwards! Call them, multiple times, and make sure you always get the same answer to the questions you are asking: for example, is amputation covered? Is my prosthetic covered? Find out what type you may get-some insurance companies won’t cover an electronic leg and you need to know what that means to you.
  2. Talk to a prosthetist or two. Get to know them. Ask questions that you have thought about, like what type of leg you could get based on your physical activity level. There’s a K test they do to see where you are and insurance companies use that to determine what they will cover.
  3. Ask those prosthetist for people that would be willing to do a peer-to-peer. Talking with amputees, especially successful ones, will bolster confidence that you can do it too, and also give you an idea of their day to day routine and struggles they’ve overcome. I also learned through my peer-to-peer visits that they all had a common thread: they all had a great, positive attitude and all of them set goals for themselves for AFTER the amputation. Goals setting is so key, but attitude can make or break the situation you’ll be in.
  4. Get second, third and even fourth opinions about the surgery from different doctors. It’ll be insightful to hear the different takes they each have.

You have your work cut out for you until next week. Reach out to me if you have questions. I’d love to talk!

Until next time,

Be Healthy,

Be Happy,

Be YOU!

-My first “real” photo after I got home- I hadn’t “shown off” my new look until this moment

 

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Embrace your new life. Except it and then you can find true happiness in the choice you made OR the choice that had to be made for you. You’ve got this! I know you can do it.

-Much love,

Angie