Tag: medical

One Size Doesn’t Fit All

One Size Doesn’t Fit All

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Podcast: Play in new window | Download (Duration: 57:51 — 40.0MB)

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Not All Sockets (or Prosthetists) Are Made the Same

Randy West, myself, and David Banks

 

I consider myself so fortunate to have been directed to The Limb Center by my doctor, Dr. Judd Cummings, as I was planning for my amputation. And I think I am a good judge of character, so when I went in to meet Randy West and David Banks for the first time, pre-amputation, I knew I was getting the best care out there!

Fitting my running blade and trying it out for the first time

 

When I told Randy I wanted to surf and I brought him some surf leg plans he graciously went to work and built it for me,
just because he knew it was my dream!

 

Cheesy, but priceless, photo op with Randy, the Blue guy and my new surf leg!😎

 

They listened to me. They actually HEARD what I was telling them about my dreams, goals and aspirations….as well as my fears and doubts about going through with this surgery.

Not often, but in my situation, I was able to take my test socket out for a “test drive”

 

…and test drive it I did!! A 5K hike! It ended up being a great fit.

 

I had visited another prosthetist’s office before I knew of The Limb Center, and I had a pretty good experience there, too. I also met an amazing young lady who was an above knee amputee and a fighter, while I was there. However, three major factors first swayed me to Randy and David, before I really knew them. 1) They took my insurance- this is VERY important and the other office did not! 2) My doctor was very familiar with them and worked with them directly and, quite frankly, I trusted my surgeon and his opinion in this matter, and 3) David was an above knee amputee with 20+ years of experience being one. He could see things and understand an amputee better just by living it.

Amazing attention to detail, and always teaching me how to be independent,
by showing me how my prosthetic works and fits.

 

Then once I got to meet them and talk through my decision to amputate, I knew that we had a connection far greater than me being an office visit here and there. I had their cell phone numbers, could call or text whenever there was a problem, and time and again, they showed me that I mattered to them.

This is the type of relationship you should have and that you deserve with your prosthetist.

Randy and David join me in this podcast as we discuss the right “fit” in your relationship with your prosthetist, insurance and getting the right coverage, steps to getting your first socket, and when to turn around and walk out of that office and find the right relationship you need to be a healthy, happy amputee.  It can happen, but you need to push that for yourself and know when to do it.

Knowledge is power, and I want to arm you with as much knowledge as I can so you can feel confident and ready to advocate for yourself in the medical field, in your doctor appointments and when finding and working with your prosthetist. When we have knowledge, confidence, and opportunity we can access limitless possibilities in our lives.

 

 

People don’t realize that who you see for your prosthetics is so very important-it can make or break your desire and ability to really live your life after amputation, and it’s a relationship, like family.  You’ll be working with them for years to come so you’ll want to make sure you trust and enjoy working with them.

As always, if you have comments or questions, for me or our guests, please feel free to reach out to me. I’d be happy to help.

Time to do the research and leg work- no pun intended. Talk to people, find social media groups that work with amputees, reach out to the Amputee Coalition and your doctor to see who they recommend as a prosthetist for you.

Once you have found a couple, make an appointment to go talk with them. Read their body language and how they talk with you. Do they want to hear your history, problems, dreams and aspirations? If not, move on to the next appointment. You deserve better, and it’s out there!

Make sure you address insurance issues and coverage with the prosthetist’s office. This is expensive equipment and will need to be upgraded over time- remember, it isn’t growing back so we need to make sure we have some help in coverage of costs.

If you have a prosthetist that you are unhappy with, and they don’t seem to listen or invest any more than your short office visit then you really need to find the courage and tell them it’s not working. If you are seeing someone who,  when you tell them you’re hurting or something doesn’t feel right, and they tell you that it doesn’t get any better and you need to deal with it…that’s a red flag! Time to research other places and prosthetists and find someone who can help.

This is YOUR life and YOUR body. You need to push for the best care so you can live it to the fullest. Don’t be afraid to stand up for your rights. I’m telling you, there are really good practitioners out there, you just need to look and ask the right questions to find them.

I wish you all well, and please don’t hesitate to reach out to me for help.

 

Until next time:

Be Healthy,

Be Happy,

Be YOU

“We cannot change the cards we are dealt, just how we play the game.”

-Randy Pausch

 

Is Amputation Right For You?

Is Amputation Right For You?

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Podcast: Play in new window | Download (Duration: 57:41 — 44.8MB)

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Advocating For Yourself When You Reach That Moment

-My First steps as an amputee
-This was pure joy: a new life had been opened up to me
-The possibilities were endless

-My amazing nurses that saw me through
several days of recovery
-This was just before being discharged
-Excitement mixed with nerves

-Dr Judd Cummings, my amazing orthopedic surgeon

 

That moment had come, in my mind. I had done everything to make my knee work the way it was suppose to. I spent years in PT. I tried medication, pain management, dry needling, cryotherapy, holistic/Eastern medicine, blocks, non-invasive surgeries, and allergy testing. NOTHING helped. When I came home from Europe only to find out I had a blood clot and could’ve died in flight was it then that  I realized  that was it, the end of my pursuits to regaining mobility with the knee I was born with.

Enter Dr. Judd Cummings.

He listened to my concerns, had a real grasp of my years of trying to make things better and let me know that I was in the right place, checked off all the boxes, and that amputation was definitely a route he could help me take.

Was this an easy thing to talk about? No way! For a while I couldn’t even say the “A” word. If I did, it became real and I wasn’t emotionally there yet. I got several other opinions before heading back to Dr. Cummings office. One opinion even told me that I’d never walk again if I amputated!! Can you believe that!?!?

The reality is, you need to be in the right state of mind to accept it and go forward with this surgery. How did I know it was right for me? I knew I had exhausted all my options. I had started talking to people in that world who had success with their amputation, and I knew that I was NOT living my life. I was defeated. I was tired of working so hard for something that wasn’t working. I missed doing things with my family, my boys, who were growing up so quickly before my eyes while I watched from the sidelines.

I once had a doctor tell me that I would be a good candidate for amputation however I wasn’t there, yet. I had no idea what he meant by that….until my blood clot. It was like a final slap in the face. The final straw that broke the proverbial camel’s back. At that moment, in the ER, when the doctor told me I had a blood clot, I knew right then and there that I was physically ready for amputation.

I spent over a month getting second opinions, even though I knew I wanted Dr. Cummings to do the surgery, but I was doing my due diligence. Making sure I heard everything loud and clear from several medical professionals, asking a lot of questions, and sometimes hearing things I didn’t want to hear. Each one of those appointments lead me to the final decision, with conviction.

After I set the date for December 18, 2018 I had 3 months to mull it over, ask more questions, worry, get confused, doubt my decision and have nightmares. It was not an easy road leading up to that fateful date. But in those months I gained mental strength that was needed to rise above and succeed in my endeavor. By the time I woke, the morning of my surgery, I was in the best spirits, the weight of my decision was in God’s hands and I was ready! My Faith drove me forward, gave me confidence and conviction.

-I did it for them❤

When I woke after surgery, the moment I actually feared the most, I never felt better. Even my family was shocked by my recovery (I usually am very groggy and sick to my stomach when I come to), and my chirper behavior surprised them.

As I speak with Dr. Cummings in my interview you’ll hear some things that can help you succeed, if this is the path laid out for you. We discuss advocating for yourself in the doctor appoints, gaining perspective through talking to others who have been there, and knowing when to seek another opinion. Dr. Cummings also tells us what things he, as a professional, looks for when deciding if amputation is the best avenue for his patients.

This is not an easy road but it is possible to live your life once again. Yes, I look different. Yes, I have more hurdles to jump over when doing everyday chores. Yes, there are good days and bad days, but everyone has those. It’s ultimately your mindset and the attitude you take about your circumstance that can determine the success you have or don’t have.

Take a listen. Hear what we are saying and know that you, too, can live a full, healthy, and active life as an amputee.

Find joy in where you are, and hope that new adventures can still be had after amputation!

This week, if you believe you may be a candidate for amputation, or you’re leaning towards it, OR your doctor has told you that this is the way you should go then I want you to do a few things to help you in the decision making process.

  1. Check with your insurance on their coverage. This is a lifelong journey, not done once surgery is done. You’ll need to really advocate for yourself with your insurance company for the surgery AND the prosthetic care afterwards! Call them, multiple times, and make sure you always get the same answer to the questions you are asking: for example, is amputation covered? Is my prosthetic covered? Find out what type you may get-some insurance companies won’t cover an electronic leg and you need to know what that means to you.
  2. Talk to a prosthetist or two. Get to know them. Ask questions that you have thought about, like what type of leg you could get based on your physical activity level. There’s a K test they do to see where you are and insurance companies use that to determine what they will cover.
  3. Ask those prosthetist for people that would be willing to do a peer-to-peer. Talking with amputees, especially successful ones, will bolster confidence that you can do it too, and also give you an idea of their day to day routine and struggles they’ve overcome. I also learned through my peer-to-peer visits that they all had a common thread: they all had a great, positive attitude and all of them set goals for themselves for AFTER the amputation. Goals setting is so key, but attitude can make or break the situation you’ll be in.
  4. Get second, third and even fourth opinions about the surgery from different doctors. It’ll be insightful to hear the different takes they each have.

You have your work cut out for you until next week. Reach out to me if you have questions. I’d love to talk!

Until next time,

Be Healthy,

Be Happy,

Be YOU!

-My first “real” photo after I got home- I hadn’t “shown off” my new look until this moment

 

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Embrace your new life. Except it and then you can find true happiness in the choice you made OR the choice that had to be made for you. You’ve got this! I know you can do it.

-Much love,

Angie

 

Facing Fears, Overcoming Obstacles

Facing Fears, Overcoming Obstacles

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Podcast: Play in new window | Download (Duration: 1:11:08 — 54.4MB)

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What’s Holding You Back?What if I told you that you can overcome your fears. What if I told you that you could rise above your circumstances and that they do NOT define you?

You need to hear Mike’s story, but not just what happened to him, listen to how he speaks about it. Listen to his message of the hope, and how he looked toward his future and NOT his past. Hear his heart and about the faith he had that this was all part of a bigger plan. We could all learn a thing or two from his approach to living a full and rewarding life and how his positivity and mindset might be just what you need to be inspired to make the most of your circumstances.

I met Mike while we were in Kauai on vacation a couple of years ago. I didn’t know his story before meeting him but was intrigued to hear that he lost his leg in a shark attack and went right back to surfing.  Talk about facing fears! Wow! I find his story inspiring, not just because he went back to surfing but because he took a life changing event and made the most of it. To become a shark advocate and to be face to face with them so he could photograph them and show the world what beauty lies within these ancient creatures is, to me, the ultimate sign of courage and strength.

What I realized after talking with Mike, in depth, is that we ALL have that capability inside of us. We can all make the choice to see the positive in any situation. We can get knocked down a hundred times but rise 101 times. We control the power within ourselves to be great and live a full and meaningful life, no matter what hand we are dealt.

Mike and I meeting for the first time in Kilauea, Kauai

 

I really hope you hear the message Mike presents in our interview, and understand that it’s possible to find happiness in tragedy, hope when you feel hopeless, and success in overcoming fear. You can do this! You are strong enough and you have a story to share with others. Through your fight and your journey, you, too, can and will inspire.

 

Call to Action:

Decide if you are playing the victim and throwing a pity party because life didn’t deal you the hand you think you deserve or are you looking at that circumstances as a way to rise to the challenge and going to make the best of it.

Then decide if you want to make a change and start living your life.

If you are choosing to take back control of your life, what do you need to make this happen?

Do you need to change your thinking? Then start by seeing the positive- I try to remember that I am lucky to be alive and healthy and can now do the things I couldn’t do just 2 years ago. I also realize that there are people in worse situations than I am and that I should have a a heart of gratitude.

Do you need help? Reach out to a family member, a friend, a close co-worker or find a support group. Sometimes it’s just plain tough to go it alone and a healthy, open relationship is just what you need. Be honest with yourself and your family about how you’re feeling. Sometimes just talking through your feelings will release your anxiety and allow you to grow.

Once you figure out what’s holding you back you can begin to move forward and make the necessary changes to improve your outlook on your life, and begin to have a positive, healthy mindset that will translate to a more profitable lifestyle for you and those around you.

This week I want you to work on your thinking and how you perceive your life. Be positive, upbeat, lose the negativity and smile. The simple act of smiling increases the release of endorphins and serotonin- a pain reliever and antidepressant, respectively. Try it!

I want to see you soar! I want to see you live a healthy, full and wonderful life. It’s there for the making.

 

Next week join me as I speak with Dr. Judd Cummings, the Orthopedic surgeon who performed my amputation and helped me get my life back.

Until next time:

Be Healthy,

Be Happy,

Be YOU!

 

 

 

Starfish Arms and Lizard Tails

Starfish Arms and Lizard Tails

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Podcast: Play in new window | Download (Duration: 45:18 — 50.9MB)

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It won’t grow back so it’s time to change your thinking!

The road I’ve taken to get where I am and to be the person you see here has been long and filled with bumps and bruises along the way. I got knocked down-over and over again but I chose to get back up. Today, I share my journey with you for the first time. From injury to amputation, this is my personal story.

To be transparent is to show the world your weakest side, your weakest moments in hopes of inspiring and motivating others. I hope my story gives you hope, makes you laugh, and maybe even shed a tear because you  know this story all too well, as it mirrors your own.

Mine started in taekwondo. That’s when I felt like my train derailed. Little did I know what the next several years would bring, who I’d meet along the way, and the lessons I would learn.

Know their is hope in your story. That journeys serve a purpose, and that your perception and attitude will help you rise up and conquer whatever is in your way.

It’s time to unleash the warrior within you! Listen to my new podcast episode here! You can also click the link to your favorite podcast platform (Apple, Spotify, iHeart Radio) on this page.

After you listen, add your Call To Action comments here so I can see where you’re at in your journey and respond.

Thanks  for listening and please subscribe and don’t forget to share my link with someone you know that needs encouragement today!!

 
Starfish Arms and Lizard tails

Starfish Arms and Lizard tails

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New podcast episode is on it’s way. In this episode I want to delve into my history up to my amputation so you can understand where my experience comes from and what I’ve been through. Amputation happens all the time, and for so many different reasons: accident/trauma, disease, infection, and elected.  To understand my view point and my drive- what makes me tick- you must first know who I am and what I went through. Let’s call this the starting point of our relationship, our first date, in some ways. You wouldn’t spend time or energy on someone you knew nothing about unless they led you to believe there was something worth getting to know. In this episode I will do just that. Time to get personal and share my story.  You will understand what makes me…. Me! And my hope is to reach you, my listener, so that you can relate to parts (or all) of my story and feel comfortable with the topics at hand and why I am sharing. I want to help others, who have struggled in life, reach their potential no matter what their circumstance. To give hope to those who feel they have none and to show you how to stand strong and live your best life through the ups and downs, and ins and outs of my journey.

Fasten your seatbelts as we jump into my pre-amputation life- it was a wild ride for about 6 years!
This Can’t Be MY Life!

This Can’t Be MY Life!

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Podcast: Play in new window | Download (Duration: 1:50 — 1.9MB)

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Welcome to my trailer of Be-YOU-tiful Adaptive Warrior. This is a quick introduction to what you will be hearing about throughout my episodes. My journey through healing and living my best life, and how I can help you achieve that same success.

For more information please contact Angie at: BAWarrior360@gmail.com

Coming Soon!!!!

Coming Soon!!!!

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Welcome to my podcast website! You’ll soon be able to check out my Podcast: Be-YOU-tiful Adaptive Warrior and see my blog posts that will be directed towards empowering others to live a full, healthy, and active lifestyle while creating an attitude that creates success.

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